As we all pass the yearlong mark of COVID-19 turning our worlds upside down and patiently await vaccines, there are many for whom the nightmare of this disease has been debilitating.

The long-haulers, or people who have many strange and long-lasting symptoms of this disease, have been looking for answers and sometimes fighting for recognition of their illness.

Recently, Dr. Anthony Fauci of the National Institute of Allergy and Infectious Diseases (NIAID) in the U.S. shared the official term for long-haulers condition — Post-Acute Sequelae of SARS-CoV-2 (PASC) — which for some is the start of recognizing their struggle. There are various approaches around the world for those struck with PASC, but many in Ontario feel the patchwork approach here isn’t enough to deal with their ongoing problems.

May Warren is a reporter on the Star’s health and science team who covers COVID-19. She has been speaking to people with long-haul symptoms throughout the pandemic. She joins “This Matters” to talk about their hunt for answers.

Listen to this episode and more at “This Matters” or subscribe at Apple Podcasts, Spotify, Google Podcasts or wherever you listen to your favourite podcasts. If you would like to support the journalism of the Toronto Star, you can subscribe at thestar.com/subscribingmatters.

Raju Mudhar is a co-host and producer on the Star’s podcast team. He is based in Toronto. Follow him on Twitter: @rajumudhar

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